Family Updates

A set back -

After a dramatic drop on this morning's labs, we are praying even more so for his sodium levels to increase, but now we are ALSO praying for his potassium levels to increase. Both are on the verge of critical. Based on what those levels are with his upcoming 5am blood work, will be the deciding factor if we will be getting readmitted to the PICU.

He was just so-so today, didn't really want to eat much but he did eat some -- appetite wasn't anywhere where it was yesterday, and we didn't do much activity today. His overall demeanor was ''puny and weak''... and he did vomit a few times again... after going so long without doing it.

His Blake drainage was up overnight and stripping the tubes causes his a lot of pain. He still has that board on his IV arm, so he's unable to play Mario Kart on the Wii here at the hospital, or play with his own Nintendo DS that we brought with us. If he hadn't done so poorly over the last 20 hours, if the labs weren't all over the place, and if the Blake drainage hadn't picked up, we probably could of been thinking home was around the corner... but from what the doctors told us this morning, it's not even in sight yet.

I held back posting anything today, because things just didn't go as smoothly as Andrew and I had hoped for. We (Andrew, myself AND Tyler) worked SO HARD yesterday to bring everything to normal balance and to not have puke and to not have this & that... . and the blow we took today hurt our efforts and spirits. We felt as if we kinda "threw in the towel" today. Maybe that will do some good?!